Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Woman Turns Boeing Plane Into Fully Functional Home
Buses, small houses, and shipping containers have all seen a surge in appeal as potential building materials for one-of-a-kind dwellings.
These alternatives to standard lodgings offer the same level of comfort at a fraction of the price and with a wide range of personalization options.
But Jo Ann Ussery made her own unique house long before it was cool.
She bought a decommissioned Boeing 727 and transformed it into a lavish mansion.
(video of the plane can be found below)
One-of-a-kind housing
In 1993, Ussery’s home in Benoit, Mississippi was destroyed, marking the beginning of her journey.
Her husband had recently passed away, so she and her two kids needed a place to live but had very little money.
She had hoped that getting a trailer would solve all of her issues, but she soon discovered that she couldn’t afford a house that was big enough to accommodate her family of three.
Ussery’s brother-in-law, Bob, is an air traffic controller and proposed that they try living on an airplane.
Ussery was receptive to the concept, so he went to examine a Boeing 727 that was about to be broken up for parts.
She fell in love at first sight, and the price, including shipping, was only $2,000.
Ussery gave her Boeing 727 the moniker “Little Trump” after learning that Donald Trump also had a private Boeing 727.
She jumped right into her expensive and time-consuming home improvements.
Major refurbishment
She put in less than $30,000 (around $60,000 in today’s money) on the makeover.
She needed to make sure it stayed put in its current location while she worked on the inside.
Ussery made use of the lake that was already present on her property by parking the plane such that the nose pointed out over the water. Because of this particular reason, a substantial amount of concrete was used to secure the tail. She then started demolishing the nearly 1,500 square foot interior.
The plane measures 138 feet in length and has 76 windows.
The windows did not open, as is standard on commercial planes, but that was not a problem on the Ussery because the plane was equipped with air conditioning.
She upgraded the insulation and laid new flooring as well. What exactly from the original 727 has been preserved?
Having only one airplane lavatory and the overhead bins to store your belongings is a brilliant answer to the problem of limited space.
Interior features
Ussery was able to move on to the finer touches and extra comforts after the major renovations were finished.
There were three bedrooms, a living area, a kitchen, and even a laundry room in the updated plane.
It also had an oven and a phone in addition to the washer and dryer.
What Ussery did with the cockpit looking out over the lake was unquestionably the best improvement.
She renovated it into a master bathroom fit for a king, complete with a soaking tub.
She planned the room’s layout so that its occupants would feel as though they were floating in midair.
Most notably, Ussery did all the remodeling work by herself.
Between 1995 until 1999, she called her converted jet home before deciding to open it to the world as a museum.
It was being transported a short distance when it tragically fell off the carriage and was destroyed.
It’s a good thing we have these breathtaking snapshots below:
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