Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
I Love This Bar by Toby Keith
If you are a fan of country music, you might be familiar with the song “I Love This Bar” by Toby Keith. It is one of his most popular and successful songs, reaching number one on the Billboard Hot Country Singles & Tracks chart in 2003. But do you know the story behind the song and what inspired Keith to write it?
According to Wikipedia, Keith wrote this song with his friend and fellow songwriter Scotty Emerick. They were inspired by a bar they visited in Syracuse, New York, where they saw a diverse crowd of people having fun and enjoying themselves. They decided to write a song that celebrates the bar culture and the sense of community it creates.
The song describes various characters that frequent the bar, such as bikers, yuppies, college kids, soldiers, and farmers. Keith sings about how he loves the bar for its atmosphere, music, drinks, and friendly staff. He also mentions some of the features of the bar, such as a jukebox, a dance floor, a pool table, and a big TV screen.
The song’s title also inspired a chain of restaurants owned by Keith named Toby Keith’s I Love This Bar & Grill. The restaurants feature live music, memorabilia, and southern-style food. The first one opened in 2005 in Oklahoma City, Oklahoma, and since then more than 20 locations have been opened across the US.
You can listen to the song on Spotify or watch the official music video on YouTube. You can also read more about the meaning behind the song on this website. If you love this song as much as Toby Keith loves this bar, you might want to check out his other hits from his album Shock’n Y’all, such as “American Soldier” and “Beer for My Horses”.
See alsoAnnie’s Song by John Denver
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