The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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The fattest girl in the world managed to lose weight. This is how she looks like now
Jessica Leonard from Chicago holds the weight record.
At the age of 7 her weight reached 222 kg.
She could not move on her own and needed the help of her mother, who brought her daughter to such a state.
The classic American version, when an overly loving mother cannot fight the whims and indulges any desire of her daughter.
As a result, the woman simply fed the child unhealthy food.
During the day, Jessica ate foods with a value of 10 thousand calories instead of 1800 (the norm for children of her age).
Moreover, the main diet consisted of fast food: pizza, hamburgers, soda, French fries and other high-calorie food.
The mother of the record-holder in weight also suffered from obesity, though not on such a scale.
The baby overcame the 100-kilogram at the age of 4.
Then the parents began to notice the first health problems of their daughter.
But even this condition of the daughter did not force the mother to become stricter in terms of nutrition.
Thanks to the help of ordinary Americans and doctors, the girl got rid of 140 kilograms.
It took her a year and a half of hard work, diets and ivs.
Now the baby who had the status of the fattest child in the world weighs 80 kg.
Of course, this is above the norm, but still the threat to the child’s life has already passed.
This is not the end of Jessica’s struggle.
She still has to go on diets, exercise.
Also, the girl will have to undergo several operations that will help restore the motor ability of the joints of the legs and get rid of excess skin.
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