Jesús Aceves has hypertrichosis, which makes his hair grow abundantly over his face and back. Because of his condition, he’s also known as The Wolf Man. But he’s tired of this alias and wants to live a normal life.
Meet Jesús Aceves, a 55-year-old man born with a condition called hypertrichosis, which means he has abnormal hair growth over his body, especially his face. Although married with kids, Jesús isn’t fully happy with his living conditions. He says he and his family suffer discrimination. In an interview, one of his kids mentioned, “People call me names, and they even tell their kids not to be my friends.”
He worked in the circus all his life, traveling through several cities. But now, he’s tired of being seen as a freak. As a consequence of years on the road, he’s been known as The Wolf Man.
Back home and not in the circus anymore, he’s facing another challenge: finding a “normal” job. He needs to support his family since his wife works in temporary jobs.
After several failed job interviews, he agreed to try something he had always avoided: shave his face. He relied on his family barber to transform him, even creating eyebrows and lashes.
The experience was difficult since the face is an extremely sensitive body area, but both he and his wife believed that simply by shaving, he would be able to find a job.
Jesús did several interviews, and it’s confident that now he’ll find somewhere to work besides the circus. If this happens, he must shave his face every 2 days.
Although rare, some conditions aren’t impossible to have. Luckily, people find a way to overcome the difficulties a rare condition brings and strive in life. Hannah Tyre, for example, was born with osteogenesis imperfecta, meaning that her bones break very easily. But her love for makeup made her an internet influencer, reaching millions of followers. We hope that, by reaching the mainstream media, people with genetic diseases won’t suffer more discrimination.
Preview photo credit A True Story / Youtube
Beloved Sports Reporter’s 2-Year-Old Daughter Has Passed Away Following Valiant Battle With Leukemia
Hallie Kyed was diagnosed with acute myeloid leukemia in April 2023, nine months ago, at the age of two. Sadly, Hallie lost her life on January 21 at the age of 2, as her father, Doug Kyed, an NFL reporter for the Boston Herald, revealed on Instagram.
Kyed claims that after his daughter experienced a relapse after receiving a bone marrow transplant, things took a turn for the worst. Her chemo had run its course.
Doug writes, “On Sunday morning, Hallie passed away peacefully in her sleep while Jen and I held her hands in bed.” “Without Hallie, we’re sad and totally lost. Never again will our lives be the same.
Doug went on to say that his young daughter “was a special kid.” Furthermore, “she made a positive impact on so many people she met,” even at the age of two.
Olivia was blessed to have the greatest baby sister, and we were fortunate to be her parents.
The family “spent special time at the hospital last week, but we held out hope for remission because of how brave, strong, and resilient Hallie had been through her entire nine-month battle with acute myeloid leukemia and all of its complications,” the reporter said, adding that they “knew the prognosis was poor when she relapsed after her bone marrow transplant.”
However, despite Hallie’s bravery and fortitude in the face of such adversity, “her aggressive form of leukemia had grown out of control by the time she started a trial treatment, and chemotherapy after transplant was ineffective.”
Doug gave Boston Children’s Hospital’s physicians high marks for their efforts because “they did everything they could to help Hallie, and she beat AML every day for over nine months straight.” After her successful transplant in October, or even when she was first diagnosed in April, nothing could have possibly prepared us for this moment.
Hallie would shout “DADDDDYYY” at him, requesting that he “take her on a walk around the hospital floor.” The bereaved father revealed that Hallie would also give him “sweet little pats on the back when I took her out of her crib.”
Hal, my koala baby, my tiny Hallie Bear, my Sour Patch Kid… was incredibly gorgeous, hilarious by nature (and knew it), and destined to be a dancing class star. The medical personnel, doctors, and nurses enjoyed guessing which princess attire she would be sporting that day (or at that certain hour).
Doug also hopes that those who are grieving for his daughter will learn one thing from her: “to know exactly what you want and to be persistent in asking for it, whether it’s going on a walk, riding in the car, or wearing one particular Disney dress (usually Cruella).” Despite the fact that “the world is a worse place without Hallie in it,” he hopes.
I will miss giving her a head kiss, petting her hair, and telling her how much I adore her. Hallie indefinitely.
On January 26, Hallie will be laid to rest. The Kyed family is in our thoughts and prayers during this especially trying time.
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