A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack

Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.

Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.

Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.

Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.

When her husband visited Jennie, he was strangely silent and looked worried and puzzled.

“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.

“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”

Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.

\

Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.

There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.

In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.

“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.

She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”

12 People Who Were Right to Trust Their Gut Feeling

Listening to what your intuition is telling you might just keep you safe from harm or sorrow. That’s what people online found out the hard way, when trusting their gut feeling meant a completely different outcome in a serious situation. Their stories are an important reminder for us to believe in our own inner voice.

  • I would always walk down the hallway in the night without turning the lights on. One night I get to the end of the hallway and have a sudden urgent feeling that I need to turn the lights on.
    I go all the way back to my room and turn the hallway light on and go back.
    Just in front of where I had decided to turn around was a huge and deadly Taipan snake making its way from one room to another across the hallway. If it had bitten me in the dark they wouldn’t have been able to get me the correct antivenom. © risska / Reddit
  • I was mowing my backyard with a ride-on mower, and I began to get an overwhelming feeling of being watched. I started looking around and thought I saw a figure in the upstairs window. I tried ignoring this as no one was home and continued with mowing when I started to feel an unbearable sense of dread.
    This made me immediately stop. As I did so, the ground in front of me gave way forming a 15-foot wide 12 foot deep sinkhole. If I hadn’t stopped immediately I likely would have been crushed by the tractor. © MujimIsYou / Reddit
  • My wife and I rented a really nice cabin in Big Sur, California, for a few nights. She woke up panicky and crying (which she never does) over a bad dream. I had an awful feeling after waking up and told her we could go for a drive.
    The further we went, the better we felt. We ended up staying in Monterey for the night. The cabin we were at burnt down. I still get chills writing this years later. © Unknown user / Reddit
  • I asked my mother to take me home early from boy scout camp because I was afraid of bears. A bear ravaged the camp the night I left. Luckily, it didn’t hurt anyone. It just tore everything up from what I was told. © SenatusRomanus / Reddit
  • I’m a firefighter. We got called out to a tree fire started by fallen power lines. We pull up in the truck, and I’m trusting that my driver and crew leader are doing their job and have good situational awareness. We get out of the truck, and we’ve parked next to a set of power lines (not fallen). It’s a very windy night and I can see the lines swinging, so I voice my concerns to my crew leader who says it’ll be fine.
    We get our hose out (risk of the tree fire catching onto a house outweighing potential risk of arcing plus the line disconnected when it fell) and I’m on the branch ready to start putting it out with two others near me when I get a chill. I look up to see the lines swinging violently and yell, “everyone move”. As the three of us sprint and dive out of the way we hear a thwip and crack and sure enough the line we were under came loose and stayed connected to the power pole. If I hadn’t got that chill chances are we would all have died. © DYESMOD / Reddit
  • My daughter was a year and a half at the time. She had a cold, but bedtime went off without a hitch. I woke up in the middle of the night that night, really uncomfortable and anxious. Something was off, and I couldn’t put my finger on it. I got up, had a midnight snack, tried to calm my nerves. I decided to check on my kids, who shared a room, before trying to go back to sleep.
    I get in there, and immediately I hear a light sound coming from her crib—wheezing. It was so quiet, there was no way to hear it outside of the room. I got her up and saw that her breathing was fast and labored. I took her to the hospital, where she ended up with an overnight stay, oxygen, and nebulizer treatments because her oxygen had dipped. She was diagnosed with Reactive Airway Disease due to the cold (which triggered an asthma attack). © Thr33wolfmoon / Reddit

I was riding my motorcycle with a friend on the back. We were going down a country road behind a truck hauling a bunch of old car tires when all of a sudden I decided we shouldn’t be there, so I slowed way down to let the truck go ahead of us. Just as I did, one of the tires fell off the truck and landed right where we would have been. © d***eyeAZ / Reddit

  • When I was two or three, I had nightmares. One night I woke up, went to my foster parents’ room, and informed them that there was a bee under my pillow. “No, there’s not, Arwen. Go back to sleep,” they said. Cue the rivers of tears. Finally, my foster mom goes into my room, switches my light on, says, “There aren’t any bees in here. Look!”
    As she picks up my pillow lo and behold, a bee flew out. My mom shooed the bee out the window as I was sobbing hysterically. She gave me the strangest look and asked how I knew the bee was there. I had no idea. My nightmare was completely unrelated. © Unkown user / Reddit
  • I was like 5 or 6 when my mom and sisters wanted to go for a drive out of town. I cried and cried because I just didn’t want to go with them for some reason, and decided to go with my other sister in her car. Turns out, my mom and other sisters ended up crashing, and they said, “If you were in the car, you would’ve had to sit in the middle, and you would’ve died.” Luckily my family was okay though. But I sure did feel really cool after that. © SnowLeopard000 / Reddit
  • I was driving on the road one night and I saw a car in the middle of the road with two people lying on the ground. My gut feeling was that something is suspicious here, and I decided to act on it by driving past the car and the two people.
    I stop to take my phone out and call the police and I look at my rearview mirror to see the two people lying on the road stand up with five other people coming out of the bushes. © Naweezy / Reddit
  • I met this cute girl on Halloween night, so I invited her to a party I was going to later. She drove with me to the party and I took her two friends too. We talk a little, but we ended up working the room and got split up. I had this sudden overwhelming urge to find her and I ended up getting a little worried.
    Some guy had moved in and had brought her outside and taken her to a semi private area underneath a patio balcony. I didn’t really care what he thought, grabbed her by the hand, acted like it was important and led her out of the party and in to the front yard. We both heard a massive crash as the very large patio collapsed above where she was standing three minutes before.
    I know most certainly that if I hadn’t grabbed her, she wouldn’t exist today. I ended up marrying her, and imagining how it almost never happened in such a dreadful way terrifies me. © Unknown user / Reddit
  • My mom tells this story a lot. She was working in an office, and she suddenly had a powerful urge to leave her cube, just to leave and be somewhere else for no reason. Not a minute later, a fifteen-foot-wide section of the ceiling collapsed, burying the floor in metal and plaster. © Kaleon
    / Reddit

We all have personal stories we’re afraid to share because they sound unbelievable. But some people feel better sharing them anonymously online. We gathered a few of those eerie stories in this article, and they prove that anyone can be deeply affected by spooky situations.

Related Posts

Be the first to comment

Leave a Reply

Your email address will not be published.


*