Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Prayers are needed for Kurt Russell. What happened to him is terrible…
Kurt Vogel Russell is an American actor.At the age of twelve, he made his screen debut in a western series.Russell’s portrayal in Mike Nichol’s Silkwood earned him a nomination for a 1983 Golden Globe for Best Supporting Actor.Massachusetts’ Springfield is where Russell was born.Bing, his father, was an artist as well.His mother is ballerina Louise Julia Russell.Kurt Russell reportedly has a virulent flesh-eating sickness, according to The Globe.The 65-year-old actor from Hateful 8 is said to have had unattractive ulcers under his lower lip, which are a result of Peutz-Jeghers Syndrome (PJS), a condition that has been connected to colon cancer.Cancer.According to Net, “people with PJS may have a lifetime risk of cancer of up to 93%.”Dr. Stuart Fischer, who does not treat Kurt, described the ulcers as “precancerous lesions that can become aggressive and dangerous if not treated immediately and properly.”
Immunologist and Maryland resident Dr. Gabe Mirkin concurs that Kurt “needs immediate testing” and thinks PJS could be the cause of the ulcers.He needs to start counseling right away.We must pray for Kurt Russell. The Globe also claims that Kurt recently got into a fight with Goldie Hawn, his 71-year-old longtime partner.In October, Kurt was supposed to be honored into Oklahoma City’s Hall of Great Western Performers.The Hollywood Walk of Fame already bears his name.Kurt, though, is unable to attend because of a “surprise medical issue.”The actor insisted in a statement that he need surgery, which his doctor stated was a necessary treatment that couldn’t be put off.
The Oklahoman reports that he is scheduled to undergo hip replacement surgery.”My doctors say it needs to happen in September, but I thought it could wait.”As much as I would have hoped to be there this year, I am pleased that the museum has decided to postpone our honor until 2022 so I can accept this wonderful prize in person, Russell stated in the statement.We applaud Kurt Russell on being inducted into the Hall of Great Western Performers!We hope that his treatment later this month goes well and he recovers quickly.
Bottom line: Despite having his name already on the Hollywood Walk of Fame, Kurt ought to be admitted into Oklahoma City’s Hall of Great Western Performers.Kurt, though, is unable to attend because of a “surprise medical issue.”The actor, 64, was spotted in New Orleans sporting cuts and bruises on his face and arms.Kurt Russell has a fatal flesh-eating sickness, according to The Globe.
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