Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
The Importance of Kindness and Acceptance
I learned early on the importance of respecting people for who they are, despite differences. I think most people can agree that it is a basic moral lesson. Regretfully, there are still those who do not understand the value of basic acceptance and kindness.
A recent horrific event at Disney World brought to light the abhorrent depths of some people’s conduct. A brawl broke out at Belle Vue Lounge, a bar within the Boardwalk Inn, on January 25, leading to the arrest of Brent George, a 61-year-old man. Brent claimed to have been attacked by a nearby family he had been drinking with when police came. He had cuts and bruises on his face.
But more research told a different story. According to the family, a drunken Brent had come up to their table and started making fun of their sister, who has Down syndrome, by mimicking her sporadic grunts. Brent shoved the girl’s mother as she defended her daughter. A family member named Wesley Golberg attempted to step in, but Brent slapped him instead. Wesley and Brent got into a physical fight as a result, which ended when a bystander came to Wesley’s aid and took Brent out of the area.
The police opted to take into account all sides of the argument before taking Brent into custody and accusing him of four first-degree violence crimes. His plea to the charges was not guilty.
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The internet was incensed at Brent’s actions as word of the incident proliferated online. Many more showed their support for the family by denouncing the attack on Wesley and the girl’s mother as well as the belittling of someone with a disability. It’s evident that a lot of people thought Brent’s actions were wrong and should have resulted in consequences.
This event should serve as a reminder of how important it is to show compassion and kindness to other people. In addition to being upsetting, making fun of and belittling someone due to their differences can also escalate into violent confrontations. Let’s work to make the world a more caring and welcoming place where everyone is respected.
When you first read this story, how did you feel? Tell us in the comments below.
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