Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
The World’s Hairiest Girl Is Now Grown Up, Happily Married and Rocks Her New Style After Shaving
A girl, once labeled “wolf girl” and “monkey face” by her peers, knew that her condition wouldn’t stop her from finding happiness. Eventually, she discovered the love of her life, and her story reveals the profound impact it had on her life.
Supatra “Natty” Sasuphan, once dubbed the world’s hairiest girl, faced ridicule and fear from her classmates due to her unique appearance.
On August 5, 1999, something important happened in Supatra’s family. Usually, when a new baby is born, parents feel really happy and excited. That’s how Supatra’s mom and dad, Sompon and Samrerng, felt when she was born.
But their happiness was mixed with surprise, fear, and disbelief because the doctortold them their baby had a lot of hair. At first, they thought it was normal, but when they saw her in the incubator, they were shocked by how much hair she had. Supatra’s hair covered almost her whole body, and even the doctors in Thailand had never seen someone like her.
Later on, doctors figured out that Natty had a very rare skin disease called Ambras syndrome. This condition is so uncommon that there have only been 50 cases like hers documented in the world since a long time ago.
Ambras syndrome causes excess body hair growth, sparing only the palms, soles, and mouth interior, likely due to a sudden DNA change.
When Natty was born, and her mom wanted to leave the hospital, the doctors didn’t want to let her go because they were worried she might leave her child behind. Sompon told the doctor that she would never abandon her child, no matter what. She said, “We are lucky that she was born into our family.”
Natty grew up in a loving family, but not everyone was understanding of her condition, and she had to deal with some unkindness from strangers and peers.
As Natty grew up, her face remained hidden behind thick hair due to her incurable Ambras syndrome. Regular methods like laser removal couldn’t slow down her hair growth. At school, she faced ridicule because of her unique appearance. Kids called her names like “wolf girl” and “monkey face.”
Natty, however, didn’t understand why they teased her, as she considered herself a normal girl with just a bit more hair. She stated, “It’s the way I am.”
Natty’s teacher, Kuljira Posaeng, revealed that other kids were initially scared of Natty’s appearance, making her early school days difficult. Over time, though, Natty proved she was just like any other student. Teachers described her as hardworking with good grades, and she eventually became one of the most popular kids at school.
Natty’s teachers said she was a lively girl who loved to sing, dance, and act. Her parents treated her just like any other kid, and they never made her feel like she was less important. They took her everywhere and weren’t embarrassed that she looked different from other children.
Later on, Natty found her love.
Natty has come to terms with her condition, understanding that there’s no cure for it. She decided to keep her body hair the way it naturally grew from the time she was born, only shaving her face when she became a teenager. As she grew older, her self-esteem and self-image became more important to her, and she also found love.
She shared: “It began from friendship, then we became a couple.” Their conversations brought her happiness, and being together was comfortable, with a love she didn’t anticipate: “It was a kind of love that I didn’t expect would happen to me.”
Natty later married her boyfriend, calling him “the love of my life.”
She also posted pictures with her lover, showing her face without facial hair. Some people thought she might have been cured, but her dad explained that she had chosen to shave her facial hair to reveal her new look. Now, her eyes, face, mouth, lips, and cheeks are visible, with only her forehead covered by her head’s hair.
Natty, who has found love and happiness, is determined to lead a positive life and continue making a beautiful impact on society. She believes that everyone is beautiful and unique in their own way, and she wants to inspire others to embrace their individuality and radiate their inner beauty.
Before you go, be sure to check out another article where a woman shares her story to emphasize that body hair shouldn’t be criticized, highlighting the importance of self-acceptance and embracing one’s uniqueness.
Preview photo credit Guinness World Records / Facebook, truly / Youtube
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