Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
Remembering Bill Hayes, actor and long-time TV star
Bill Hayes, a pivotal figure of day-time television passed away at the age of 98.
Hayes was probably best known for his portrayal of Doug Williams on Days of Our Lives since 1970, appearing in over 2,100 episodes of the show. The role of the former con artist-turned-lounge singer became one of the longest-running characters in the show’s history.
Hayes was born in Harvey, Illinois, in 1925. Before becoming an actor, he started a career of a musician and a performer, reaching a Billboard chart-topping hit with The Ballad of Davy Crockett in 1955.
In 1953, Hayes had his Broadway debut in Me and Juliet and over the course of a decade he appeared in a number of productions.
By 1970, Hayes, a divorced father of five, was hoping to land a role closer to home when he joined the cast of Days of Our Lives, a decision that would define his career and endear him to millions of viewers.
It was on set that he met the great love of his life, actress Susan Seaforth, who played Julie Williams. Their on-screen chemistry translated into real life and the two tied the knot in 1974. They stayed together until Hayes’ passing.
Speaking of the instant connection they felt when they laid eyes on each other, Seaforth once said, “I’d seen enough to know that he was special.” Others could also see their unexplained connection. “We had a scene together shortly after meeting, and the head writer saw something going on between the two of us, just two people looking at each other, and he threw out the other plot lines he had for our characters,” she added.
Hayes and Seaforth Hayes were both honored with Lifetime Achievement Awards at the 2018 Daytime Emmys for their enduring contributions to television. The couple’s acceptance speech was heartfelt, with Bill expressing gratitude for the fans who considered them part of their own lives.
Honoring Hayes, a representative for the Peacock series told The Times in a statement, “It is with a heavy heart that we share the passing of our beloved Bill Hayes. One of the longest running characters on ‘Days of our Lives,’ Bill originated the role of Doug Williams in 1970 and portrayed him continuously throughout his life. He and his wife, Susan Seaforth Hayes, remained the foundation of the Williams-Horton family spanning more than 50 years.”
“I have known Bill for most of my life and he embodied the heart and soul of ‘Days of Our Lives,’” executive producer Ken Corday said in a statement. “Although we are grieving and will miss him, Bill’s indelible legacy will live on in our hearts and the stories we tell, both on and off the screen.”
In addition to his iconic role on Days of Our Lives, Bill Hayes had other notable television appearances, including roles in Matlock and Frasier. During the 1950s and 60s, he featured in TV adaptations of popular musicals such as Kiss Me, Kate and Once Upon a Mattress. He also portrayed John Brooks in the 1958 TV movie Little Women.
The cause of Hayes’ death hasn’t been disclosed with the public.
Rest in peace, legend.
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