The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Less than a month after painful divorce, Jason Momoa, 44, “begging” star for a date – and you might recognize her
Although Jason Momoa isn’t exactly a newcomer to the single scene, it appears that he isn’t letting his time be wasted looking for love.
At least, that’s what RadarOnline claims, claiming that the actor from Aquaman and Game of Thrones is targeting Demi Moore. When Momoa met the actress at a recent Hollywood event, he is said to have fallen in love.
As his fans are well aware, Momoa, 44, formalized his divorce from his four-year wife, Lisa Bonet, earlier this month. The two are now free to look for other partnerships after a 12-year relationship.
If RadarOnline is to be believed, Momoa has gotten in touch with Moore, Ashton Kutcher and Bruce Willis’ ex-wife. It was made public last year that the 61-year-old and the former are parents to three children together, and that she was doing everything in her power to support Bruce during his terrible battle with dementia.
Moore isn’t in a relationship, but it appears that she’s prepared to work hard to win Momoa over.
The famous couple was reportedly sighted together on January 18 at a showing of the documentary Common Ground (about a week after Momoa and Bonet filed for divorce).
“After they chatted, Jason snagged her number from a mutual friend, and he’s been laying it on thick, telling her she’s the most gorgeous woman he’s ever seen,” an insider told the National Enquirer. He’s been messaging her, wishing her a day as lovely as she is.
Demi is enamored with it despite how corny it is.
Furthermore, according to the same story, Momoa is making every effort to further matters by asking Moore out on a date.
The source went on, “He’s been pleading with her for a date and even calling friends who know her, asking them to put in a good word for him.”
According to a source who spoke to the site, Jason has a serious fetish about hooking up with Demi. “He believes they would be a fantastic match and believes Demi has a lot to teach him.”
Momoa said goodbye to the house he formerly shared with his ex-wife after he and Bonet separated, opting to live in a van instead.
Many have been taken aback by this unexpected change in lifestyle, but Momoa readily shares photos of his “van life” on social media and enjoys the minimalist design and environmentally friendly features of his new residence.
How do you feel about Moore and Momoa maybe dating? Share your opinions with us in the comments section.
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