In a small Brazilian town, there resides an extraordinary duo of identical twins named Elis and Eloá. Their story serves as a beacon of resilience and the remarkable power of the human spirit. Afflicted with Hutchinson-Gilford Progeria Syndrome, a rare and fatal genetic disorder causing accelerated aging, these twins confront their adversities with remarkable grace and strength, earning admiration from people worldwide.
Understanding Hutchinson-Gilford Progeria syndrome
HGPS stands as an exceptionally rare disorder, impacting roughly 1 in 20 million newborns globally. Marked by rapid aging from early childhood, individuals with progeria often display growth delays, diminished body fat and hair, prematurely aged skin, joint stiffness, and severe cardiovascular issues. Typically, those with HGPS have an average life expectancy of about 14.5 years, though some may extend into their late teens or early twenties. This syndrome gained public attention through the film The Curious Case of Benjamin Button.
The condition is caused by a mutation in the LMNA gene, which produces the lamin A protein responsible for maintaining the structural integrity of the cell nucleus. The mutation results in the production of an abnormal version of the protein, called progerin, which causes cells to become unstable and die prematurely.
Elis and Eloá’s journey
Elis and Eloá swiftly captured attention because of their distinctive medical condition. Despite the physical hurdles imposed by progeria, their contagious smiles and steadfast optimism have emerged as beacons of hope and inspiration. Guilherme and Elismar, the twins’ parents, have dedicated their lives to offering the utmost care for their daughters, striving to ensure they experience as normal a life as feasible within the confines of their condition.
The family’s path has been far from easy. Their daily life is filled with demanding medical routines, including physiotherapy, aimed at addressing joint stiffness and preserving mobility. Despite these challenges, Elis and Eloá approach each day with remarkable bravery and an unparalleled enthusiasm for life, which is truly remarkable.
A global community of support
Elis and Eloá’s narrative has touched hearts worldwide, sparking a surge of solidarity from individuals and groups committed to promoting awareness about progeria and backing research endeavors. The Progeria Research Foundation, a pivotal entity in this realm, has played a vital role in propelling research forward and furnishing assistance to families grappling with the condition.
Through social media platforms, the twins’ journey is shared with a broad audience, fostering a sense of community and solidarity. Their family’s updates, documenting both the highs and lows of their daily lives, provide invaluable insights into the realities of living with progeria, while also spreading a message of hope and perseverance.
Advances in research and hope for the future
In recent years, there have been remarkable advancements in comprehending and addressing progeria. A notable milestone occurred in 2020 when the U.S. Food and Drug Administration (FDA) granted approval for the first progeria treatment: lonafarnib. This medication has demonstrated efficacy in prolonging the lives of children with progeria by mitigating the accumulation of progerin in cells, thereby decelerating the disease’s advancement.
Though a cure remains elusive, ongoing research presents promising prospects. Scientists are delving into gene-editing methodologies, like CRISPR, as potential means to rectify the genetic mutation at its root. For families such as Elis and Eloá’s, these breakthroughs offer a ray of hope for the future.
And in our other article, we recounted the remarkable story of a girl born without a nose, affectionately dubbed “Voldemort,” who refuses to let her differences define her.
Jilted Wife Turns Tables on Cheating Husband, Exposes Stepchild’s Misconduct
To hide his affair, Herman inflicts emotional distress upon his stepson. When his jilted wife, the boy’s mother, learns the truth, she calmly delivers justice.
The soft melodies of Billie Holiday filled the room, the sultry voice surrounding the entangled figures on the white sofa. Herman, in his thirties, and Jezebel, his mistress, shared stolen moments in the dimly lit living room.
“This is so naughty of us!” Jezebel whispered. “What if your wife comes home early?”
For illustration purposes only | Source: Faceboo
“My wife hasn’t come home early in at least a year! We have the whole morning,” Herman insisted.
“The whole morning!” Jezebel echoed. “Well, in that case, best we make the most of it, Mr. Loverman. Kiss me like you mean it.”
“That’s not all I’m going to do; just wait,” Herman replied, tossing his sweater aside.
They lost themselves in the moment, but a creaking door interrupted them. Panic gripped the pair; Herman’s wife wasn’t supposed to be back for hours.
“Who is it?” Jezebel whispered.
“It can’t be my wife,” Herman pleaded. “She told me she was working late. Quick, get—”
The front door slammed shut, and Herman faced the music.
A young voice broke the tension. “Herman? Are you here?” Herman’s son, Jake, entered, backpack slung over his shoulders.
For illustration purposes only | Source: Facebook
“What are you doing home, Jake?” Herman asked angrily.
“They made us go home early because of a scare,” Jake explained. “They thought there was someone with a gun in the school. Herman, who is this lady?” Jake asked, looking at Jezebel.
Herman denied Jezebel’s presence. “Jake, you must be seeing things.”
“But I see a lady right there,” Jake insisted.
For illustration purposes only | Source: Facebook
Herman concocted a lie about Jake’s shock from the school scare.
“Close your eyes and count to ten. If you can’t see the ghost, it can’t see you. And you see, it’ll disappear if you do that.”
Jezebel disappeared into the bedroom as Jake obediently counted. When he opened his eyes, the woman was gone.
For illustration purposes only | Source: Facebook
“I made her disappear?” Jake exclaimed.
“You got rid of the ghost. You’re a brave young man,” Herman assured.
After coaxing Jake to keep the encounter a secret, Herman allowed him unlimited screen time.
After Jake left, Jezebel re-entered the room, disapproving of Herman’s actions. “What was that? You lied to your son?”
“Stepson,” Herman corrected. “What did you expect? Tell him about us? Admit to our affair? I’ll do whatever it takes to keep us together.”
Jezebel sighed. “Okay, cool,” she said.
“That was close, though,” Herman said. “We’ll get back to what we were doing another time!”
“Yeah,” she agreed, kissing him goodbye. “See you later, Loverman,” she added seductively.
***
Herman’s wife, Grace, returned home after sunset. Tension enveloped the dinner table as they sat down to eat. Jake seized the opportunity to share his peculiar day.
For illustration purposes only | Source: Facebook
“Mom,” he began, “we left school early today because they thought there was someone with a g un inside.”
“What…what happened?” Grace gasped.
“It was a false alarm. Everything’s fine, right, Jake?” Herman interjected.
“I’m fine,” Jake said. “But when I came home, I saw a ghost.”
“A ghost?” Grace asked, concerned.
“It’s just his imagination,” Herman intervened, concealing his panic. “Post-traumatic stress from the school scare.”
Ignoring Herman, Grace focused on Jake. “What did the ghost look like?”
“She was a lady with big, frizzy hair,” Jake explained.
“She?” Grace repeated, looking at Herman.
For illustration purposes only | Source: Facebook
Herman laughed nervously. “He must be in shock. Go watch cartoons,” he told Jake.
After Jake left, Herman leaned in, trying to placate Grace. The tension lingered.
“I’ll call the school and get Jake an appointment with the psychologist,” Grace said. “Now that you’re not working, you can take him to the appointment.”
Herman almost yelled, “I’m trying to find a job!”
“I know. But..Maybe spend less time at that Moe’s Diner you visit often and help more with Jake,” Grace suggested stiffly.
Herman didn’t say much, promising to help her with her son.
After dinner, Grace decided to talk to Jake. “Talk to the counselor at school. It might help you understand what’s going on, honey, alright?”
“Okay, Mom,” Jake said sweetly and wished Herman and Grace good night.
Herman’s heart sank in regret, realizing his secret tryst with Jezebel was unraveling. He had hoped to manage the affair, but it was proving more complicated than expected.
As they sat in the living room, Grace’s eyes locked with Herman’s. “It’s for the best that we’re taking him to a doctor. My boy’s well-being is at stake.”
They argued, and Herman again said it wasn’t needed, but Grace’s determination prevailed. “I’ll make an appointment with the psychologist for Jake! And I’m taking him there myself!”
***
In Dr. Warren’s child-friendly office, Jake’s anxiety was palpable. His tiny hands gripped the chair he sat in.
Dr. Warren greeted him warmly. “Let’s talk about what happened, Jake.”
Jake hesitated, recalling the frightening incident that brought him here and Herman’s trick with ghosts. “Herman said if I close my eyes, the ghost would disappear.”
Dr. Warren turned to Grace. “What trick did Herman show you? What ghosts?”
Grace explained Herman’s role in their lives — that he was her second husband — and Jake continued, “Herman said when I close my eyes, the ghost can’t see me, so it goes away.”
Dr. Warren addressed Jake gently. “Closing your eyes won’t make dangerous things go away. It’s important to talk to someone you trust.”
Jake nodded, sharing his fear of the ghost breaking up his family. “I saw a Iady. I am scared that lady will make Herman leave Mom.”
Dr. Warren looked at Grace. “I’m going to recommend regular visits to help Jake understand these feelings better. Jake,” he added, turning to the boy, “can you please excuse us? Your mom will be out in just a minute. I want to make an appointment for your next visit with her.”
Jake nodded and left the room.
“I divorced Jake’s father because he was unfaithful. He had an affair,” Grace told Dr. Warren.
The man nodded. “I think what’s happening with Jake is a classic case of Kleinian Projective Identification,” he said.
“Is it serious? What…what can we do?” Grace asked, concerned for her little boy.
“Don’t worry,” Dr. Warren reassured her. “It’s just a theory in child psychology based on Melanie Klein’s work. Projective identification involves a child projecting feelings onto another or the world outside, often with the intent of making the other person experience what the projector is feeling, causing delusional behavior, like Jake’s. We can deal with this.”
“I just want what’s best for Jake,” Grace said worriedly. “If you think you can help him, then we’ll do whatever it takes.”
“I’d like to work with Jake,” Dr. Warren continued. “He might need counseIing and medication. I’m here to support both of you.”
***
Grace briefed Herman on Dr. Warren’s diagnosis over dinner. “What did he call it?” Herman asked.
“Something about projecting fears onto the externaI world,” Grace said.
For illustration purposes only | Source: Facebook
“Is it a real issue?” Herman inquired.
“Yes, according to Dr. Warren. Jake might need medication,” Grace replied.
Herman Iowered his head and concentrated on eating his food. “Is something wrong?” Grace asked him.
“Uh, no, no, nothing wrong,” Herman said unconvincingly. “Just thinking.”
“I’m taking the afternoon off tomorrow and taking Jake out for lunch. I think it will be good if he and I spend some time together. Maybe he will open up about what’s troubling him.”
“Okay,” Herman agreed nervously.
At Moe’s Diner, Grace and Jake discussed the menu. Suddenly, Jake closed his eyes, claiming to see the ghost from their living room.
“The ghost? Are you sure, honey?” Grace asked, worried and concerned.
Jake pointed to the frizzy-haired waitress, Jezebel. Grace approached her, inquiring about any unusual experiences at the restaurant. But Jezebel denied any ghostly occurrences.
Grace, suspicious, pressed on, “It’s just that sometimes kids pick up on things, you know? Strange vibes or unusual occurrences. It would put my mind at ease to know if there’s anything unusual about this place. For my son’s sake.”
Jezebel dismissed Grace’s doubts, claiming that Jake had an overactive imagination. Grace thanked her and returned to the table.
But the woman sensed something off about Jezebel. Pieces of the puzzle were falling into place, and she couldn’t shake the feeling that the truth was within reach.
For illustration purposes only | Source: Facebook
When Jezebel dropped the food, Grace said nothing. Jake closed his eyes and began counting again.
“It’s okay now, Jake, she’s gone,” Grace assured. Jake opened his eyes, focusing on his ice cream.
Grace had an idea. “Jake, should we call Herman and ask him to join us for lunch?”
Jake nodded unenthusiastically.
Grace smiled, pleased. “But my phone’s dead. I’ll ask the waitress if I can use hers.”
Approaching Jezebel, Grace said, “My phone’s almost flat. Can I use yours to make a quick call to my office?”
Jezebel handed her phone reluctantly. “No problem. Go right ahead,” she said.
Grace dialed Herman’s number and got the shock of her life when the caller ID on Jezebel’s phone revealed “Loverman.” Shocked, Grace hung up quickly and returned to the table. But now the truth was out.
With a weak smile, she encouraged Jake to finish his food soon.
After arranging a playdate for Jake, Grace returned home. Settling on the sofa, she reached for her phone, dialing Dr. Warren.
“It’s Grace. I need your guidance and support.”
Grace recounted the events, revealing her plan to remove Herman’s belongings. Dr. Warren supported her decision.
Soon, the removal men arrived, packing up Herman’s things.
When Herman arrived, he was shocked. “Grace, what’s going on? What are these men doing with our things?” he asked, baffled.
For illustration purposes only | Source: Facebook
Grace imitated the charade Herman had once played with their son, a mocking smile on her lips.
“Herman, what men? I don’t see any men. You must be seeing ghosts. Oh, and to be clear, those are not our things; they are your things.”
Herman’s face paled. The tables had turned.
His voice quivered, “Grace, you must believe me. I didn’t mean for any of this to happen. I—”
For illustration purposes only | Source: Facebook
Grace cut him off, her voice firm and unwavering. “Herman, there is no room for excuses. The time for lies and infidelity is over. You know what you are to me now? A ghost!”
Herman’s eyes twisted up with regret, but Grace’s resolve held. She explained that all of his personal items were being moved to a storage facility, signaling the end of their shared life together.
“I’ve also been in consultation with Dr. Warren, and we’ve initiated criminal charges for emotional abuse. The police will be here shortly.”
Soon, two officers arrived, their badges glinting. They informed Herman of his rights and took him away; justice was served.
For illustration purposes only | Source: Facebook
Grace, feeling vindicated, turned to the door, closed her eyes, and counted to ten – her way of making Herman’s ghost disappear.
Opening her eyes, she saw Jake, who ran to her and embraced her.
Grace held him close. The road ahead was uncertain, but they were united, and they would face whatever challenges that lay ahead with courage and love.
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