Mom of Boy with Rare Condition Shares Their Life, People React Differently

Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.

At first, everything seemed normal.

Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.

For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.

Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.

Then the news of the diagnosis hit the parents, something no one could have anticipated.

As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.

Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.

Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.

In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.

His mother uses social media to spread awareness about his condition.

At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.

Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.

Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.

Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.

As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”

People in comments react differently.

Mostly people express support and empathy.

But some show a bit of skepticism.

  • Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
  • I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram

Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.

Mom In Tears After The Shelter Dog She Just Adopted Shows How Grateful He Is On The Way Home

Dogs enjoy being adopted! Mother Nature is to blame because nobody wants to live without friends or family. In the aforementioned video, the dog thanks his savior.

The adopted puppy made the decision to show his new mother how much he appreciated her while he was in the passenger seat.

His response was wonderful as he pressed his face against the woman’s arm. The mom started crying after that, and the puppy tried to comfort her.

Watch the video down below.

Please let your loved ones and friends know about this.

Heartbreaking! The dog was attacked by thousands of parasites in the mouth, unable to eat or drink for many days

It’s upsetting to read about a dog being hurt by parasites, especially when it affects their ability to eat and drink. This is a common problem in many dogs, especially if they have not had adequate preventative care.

Hundreds of parasites attacking a dog’s mouth might cause рai and discomfort. These parasites can cause inflammation and infection, making it difficult for the dog to swallow or even open his mouth. In some situations, the parasites might also cause bleeding, which can complicate matters further.

If a dog cannot eat or drink for several days, it may develop an eo problem. Dogs require regular access to food and water in order to stay healthy, and prolonged starvation or dehydration can lead to a variety of health concerns. If the dog is not treated, it will become weak and malnourished, making it more difficult to battle parasites and other ailments.

If you feel your dog has a parasite infection, you should seek veterinary care as soon as possible. A veterinarian can do a thorough examination and offer the necessary therapy to restore your dog’s health.

They may also recommend preventative care treatments, including as frequent deworming and flea and tick prevention, to keep your dog healthy in the future.

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Heartbroken over Sad shivering puppy begging passersby to save his siblings in freezing weather

 People came across a puppy all day and no one cared; whenever he saw someone passing by, he stood up, wagged his tail, and waited for help; he lay on the cold snow with faith and waited.

“Help Animal kmv” stepped in to assist, and they found four puppies in a cardboard box.

They took them to the vet and warmed them up; their bodies were infested with blood-sucking mites, and they couldn’t stand the water and stress, so they weren’t bathed. Fortunately, the doctor was still present at night. The doctor gives each puppy individual first aid and tests; the puppies test positive for parvovirus, a dangerous disease.

To reduce itching and scratching, temporary preservatives are used. Puppies are more at ease. Everyone gets eye drops, as well as the doctor’s injection.

“I was very lucky to be there at the right time,” the doctor said, “because if they let them stay a little longer, they will be in danger.”

Who dumped them there? So, where had the mother dog gone?

Nobody knows the answer. They are feeling much better after three days. They could walk around the vet’s office and examine everything.

They mature quickly, beautiful boys, but the issue they had to deal with was their skin. They had mold and needed treatment, according to the doctor, and they had severe fungal skin under their hair. They needed to be medicated on a regular basis and shower with a special shower gel.

They were given the names Lira, Nils, Martin, and Gray.

The disease healed and the hair grew back over time, and thankfully, after a long time under the care of doctors, all of them are healthy and beautiful.

Two of them have found their own happy home, while the other two are cared for and loved by everyone on the team. They have a beautiful future ahead of them.

https://youtube.com/watch?v=MCGfy8MFSSs%3Fsi%3DuVRcJMSFz0zFSLCd

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Girl Rescues Dying Dog And Then He Let’s Her Know It’s Time To Say ‘Goodbye’

Sophiane Nacer wanted to give this homeless dog the best ‘end of days’ possible, despite the fact that he was too sick to save. She promised that Hippo, an elderly stray with tumors, would only know love after he died.

“Even if it was just for a day,” Sophiane, the 19-year-old founder of Cayleb’s Kindred Senior Dog Rescue, told TODAY, Hippo was going to have the best last day ever.

After a five-day waiting period, Sophiane adopted Hippo and brought him home from the shelter. The skin of the poor dog hurt to touch. Because Hippo was in so much pain, Sophiane wasn’t sure if he could experience much.

When she saw his tail wag, all her doubts vanished. There was still hope for the sick dog. Before he left this world, he FOUGHT to feel love and happiness.

https://www.facebook.com/plugins/post.php?href=https%3A%2F%2Fwww.facebook.com%2FCaylebsKindred%2Fposts%2Fpfbid02RKuLpm7jrDAMqBMERY9ny9jtwKArAJg5e3kTAvoTBietpEU5Ve6EjVEZstUytxwhl&show_text=true&width=500

So Sophiane brought Hippo to Starbucks and bought him a Puppuccino, a Starbucks secret menu item that dogs adore, which is simply a cup filled with delectable whipped cream.

Hippo was still in good spirits the next day, so Sophiane brought him to a dog park to let him run around. He loved every second of it! He had something to say to Sophiane, though.The old dog, who was suffering but hopeful, had something to say to his new best friend… He was all set to leave. He was overjoyed that he had the opportunity to spend time with Sophiane, but he was tired and in pain, and it was time to say his goodbyes.

After the dog park, Sophiane had a vet euthanasia specialist come to her home. The vet had prepared a roasted chicken with sedatives inside for him. He was able to eat his final meal as comfortably as possible with Sophiane by his side before drifting off to a painless permanent sleep.

While this story is sad in many ways, it also has a positive side. A dying dog, who had only known suffering, was given the opportunity to spend the rest of his life, albeit brief, feeling loved and wanted.

May all dogs leave this world knowing how much they are loved! Hippo, rest in peace. You were a fantastic young man!

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