Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
I Saw All the Kids Avoiding My Son on Vacation — When I Asked Why, My Heart Broke
Taking my son on vacation felt like a dream come true, but watching the other kids avoid him was a nightmare I didn’t expect. When I confronted them, the truth shattered my heart… and had me marching towards the real culprits: their moms!
Taking my six-year-old son, Jack, on a trip was a dream that I spent years in the making. I’d saved for months to afford a few days at an exclusive seaside resort.
A resort next to the beach | Source: Midjourney
It was the kind of place that boasted private memberships for the well-to-do families who could afford it year-round but also offered guest passes for people like me.
The price wasn’t cheap, but the promise of a pristine beach, a sparkling pool, and endless activities for kids made it worth it. Jack deserved it. As a single mom, I didn’t get many chances to spoil him, and I was determined to make this vacation special.
A woman and her son at a resort lobby | Source: Midjourney
The day we arrived, his eyes went wide. “Mom, look at the pool! It’s so big! And that slide! Can we go swimming right now?”
“Let’s check in and unpack first,” I laughed, walking into the lobby of the hotel area. “But don’t worry, buddy. We’ll have plenty of time to explore everything.”
We reached the receptionist’s desk, and I was smiling like a mad woman. It was such a happy moment that I barely noticed the two ladies standing with their expensive bags and getting help from another attendant.
Two women looking at something in the lobby of a resort | Source: Midjourney
But I should’ve noted how they wrinkled their noses in my direction. It would’ve saved me a lot of trouble… and heartache.
***
That afternoon, Jack and I headed to the main pool. It was massive, with cabanas around the edges and a waterslide that twisted down into the shallow end.
The pool of a luxury resort | Source: Midjourney
My boy clutched his new beach ball and immediately spotted a group of kids playing catch in the water.
“Mom, can I go play with them?” he asked eagerly.
“Of course,” I said, smiling as he trotted over.
I watched as he approached the children with his usual confidence. “Hi! Can I play too?”
The kids stopped and stared at him, then glanced at each other. A few whispered, and then, without a word, they turned and swam away.
Kids by the pool | Source: Midjourney
I frowned as Jack returned to me.
“Mom,” he said. “Did I do something wrong?”
“No, sweetheart,” I assured him, though I was confused too. “Sometimes kids are just shy. Don’t let it bother you, okay? Maybe try again later.”
He nodded, but I saw that his initial excitement had dwindled.
A sad kid by the pool | Source: Midjourney
Unfortunately, this incident wasn’t isolated. It was a pattern I noticed by the second day. No matter where we went, like the pool, the beach, or even the kids’ club, Jack kept trying to join in, and the other children kept ignoring him.
“Mommy,” he asked that night back in our hotel room, “why don’t they want to play with me? Did I make them mad?”
“You didn’t make anyone mad,” I said, pulling him close. “You’re a wonderful kid, Jack. If they don’t want to play with you, that’s their loss.”
A mother and son talking in a hotel room | Source: Midjourney
But inside, my heart was breaking.
By the third day, I couldn’t take it anymore. Watching Jack’s confidence crumble with each rejection felt unbearable. I could play with him, of course, but I also wanted him to be able to play with kids his age.
So, that afternoon, I spotted the same group of boys by the pool and walked over. I schooled my expression and remained perfectly cheerful.
A woman walking by a pool | Source: Midjourney
“Hi there,” I said, crouching slightly to look less intimidating. “Can I ask you something? Why don’t you want to play with my son? He’s a really nice boy.”
The kids froze and exchanged nervous glances. Finally, one of them who seemed older than the rest, stepped forward shyly.
“Um… it’s not him,” he said, shuffling his feet. “It’s you.”
“Me?” I asked, stunned.
A woman looking surprsied and upset | Source: Midjourney
The boy nodded. “My mom and all the other moms said we’re not supposed to play with him because of you.”
I felt a pit in my stomach. “Why would they say that?”
He hesitated, then blurted, “Because you were on some TV show, a reality show, where people fight and act dramatic. Mom said you thought you were better than everyone else and didn’t follow the rules. And… that you were mean to everyone.”
A woman yelling on a beach with cameras around her | Source: Midjourney
I sighed. It was so hard to believe that part of my past was still coming to haunt me.
“Thank you for telling me,” I said, nodding to the boy. Then, I looked to the left and saw a group of women, looking toward us as they lounged by the pool.
Clearly, those were The Moms. I knew immediately the type of women they were, from their postures to their clothes to their stares. They probably had memberships at this resort and came often.
Elegant women laughing by the pool | Source: Midjourney
They must also feel entitled to control the social life of this place. They certainly had an eye on who their kids played with.
But what’s more, I recognized the way they stared at me. I’d seen it many times before from others who thought they knew me because of a show. So, after saying bye to the kids with a real smile (as this wasn’t their fault), I rose and marched straight to their moms.
“Excuse me,” I said, my voice sharp enough to interrupt their chatter and make them look up from their cocktails.
An angry woman with her hands on her hips by the pool | Source: Midjourney
“Hi,” said one of them, squinting her eyes. She flashed a fake, tight smile, her nose pinched like she was above talking to me.
For some reason, I knew she was the ringleader of this group.
“Hi,” I responded flatly. “I just spoke to the kids. I know what you’ve been gossiping about me, and I need to make one thing clear: you don’t get to punish my son for whatever you think I did years ago.”
A woman pointing a finger by the pool | Source: Midjourney
The Queen Bee’s grin faltered. “I’m not sure what you mean.”
“Oh, don’t play dumb,” I snapped. “Your kids told me everything. You’ve been telling them not to play with my son because of some ridiculous gossip about a TV show I was on. A show, by the way, that I left because I refused to participate in the drama and fake storylines the producers were pushing.”
TV producers on an island | Source: Midjourney
Another mom shifted uncomfortably in her chair. “Well, it wasn’t just gossip…”
“Yes, it was,” I said, cutting her off. “I stood up for myself and walked away, and if that makes me ‘a diva’ or ‘mean’ in your eyes, so be it.”
The ringleader crossed her arms. “Look, we were just trying to look out for our kids. You wouldn’t understand—”
Women looking upset by the pool | Source: Midjourney
“Oh, I understand perfectly,” I said, my voice rising. “You’re teaching your kids to judge others based on lies or what some show told you to believe. What kind of example is that? At least there’s hope for them because they told me the truth. Now, I can’t push them to play with my kid, but stop lying to them.”
None of the women responded to that, and they all took pains to avoid my eyes.
“Have a good day!” I snapped and stormed off.
A woman by the pool walking away | Source: Midjourney
Later that day, while Jack and I were building sandcastles on the beach, I noticed one of the moms walking toward me. I told my son to go fetch more water, in case she was coming to say something mean.
She hesitated a few feet away from me, as if stalling, and watched Jack run to the sea. But her steps continued after a second.
“Hi,” she said softly.
I looked up, bored. “What do you want?” I asked, not bothering to hide the edge in my voice.
A woman looking up from her spot on a sandy beach | Source: Midjourney
“I… I wanted to say I’m sorry,” she said, rushing her words. “I was wrong. I shouldn’t have judged you or your son. I also shouldn’t have said a thing to my kids. It wasn’t fair.”
I blinked but nodded slowly. “Okay…” I said. “So, you’re the only one who’s sorry?”
She shook her head and raised her hand. “No, no, no! Actually, they all feel the same way. They’re just… embarrassed. So, I came forward to apologize. We already told the children that we were wrong.”
An elegant woman at the beach | Source: Midjourney
I breathed a sigh. “Alright. I appreciate that.”
She smiled brightly, and now that I wasn’t so angry, I thought she looked beautiful, like a classic Hollywood actress.
A second later, I spotted the Queen Bee walking toward us with two other moms in tow. They apologized as well, and their words felt genuine.
I nodded, accepting their remorse, but I wasn’t sure all was clear. After all, my son was still without friends here.
A woman standing by sandcastles | Source: Midjourney
Speaking of Jack… I turned to look for him by the sea and smiled as my heart swelled. The kids had already gathered around him, and suddenly, they broke into a game of tag.
When I turned back to look at the moms, they were also smiling at the children.
A moment later, the classic Hollywood actress linked her arm with mine. “I’m Julie. Do you want to have a drink with us?” she asked eagerly.
And with that, the rest of the vacation was exactly what I envisioned. I had fun with my boy by the pool and by the beach. I even socialized a lot with the moms, although cautiously.
A mother and son running at the beach | Source: Midjourney
Jack had the fun I hoped he would, and that was more than enough to make me forget about the initial hiccup.
What’s more, this trip reminded me more than ever that adults set the example. If we admit our mistakes, apologize, and do better, our kids will notice. They’ll follow suit.
I’m not perfect, but I try to be the best version of myself, so my son strives for the same.
A mother and son on a porch swing | Source: Midjourney
This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.
The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided “as is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.
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