Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
My Friend Talked Trash about My Daughter, So I Made Her Regret It
My Friend Talked Trash about My Daughter, So I Made Her Regret It
When lifelong friends Eleanor and Lucy clash over a shocking revelation about their children’s secret relationship, their Monday gatherings take a tense turn. As buried insecurities and long-held grudges surface, their bond faces the ultimate test of loyalty and forgiveness.
Each Monday, we gather at my house with my friends of 55 years, finally resting and chatting after babysitting our grandkids. This week, it was just Lucy and me, savoring the peace.
Eleanor and Lucy drink tea | Source: Midjourney
Suddenly, Lucy burst out, “I’m mad as hell! I’ve been trying to introduce my Barney to that nurse for a year. My dear son decided to do everything on his own. Can you imagine, I found this rag at his apartment?!”
I nearly choked on my tea. I knew those clothes! Lucy waved a red silk shirt and a headband.
Eleanor nearly spits her tea out | Source: Midjourney
“Who wears this? A woman of easy virtue? Oh, God, some girl from the streets has ensnared my son!”
I felt dizzy. Those were 100% my daughter’s clothes! That gorgeous red silk shirt and headband were a gift from me.
The red skirt | Source: Midjourney
“She doesn’t deserve my son. Period. And be sure, I’ll get rid of her!” Lucy declared.
While Lucy was plotting her next move, I created my own plan to teach her a lesson for insulting my daughter.
Lucy judges the girl | Source: Midjourney
“Lucy, maybe there’s an explanation. Barney’s a grown man, after all,” I said.
Lucy huffed. “Explanation? My Barney has poor taste in women, clearly!”
“Don’t you think you’re being harsh? You don’t know her,” I challenged.
Eleanor tries to soften Lucy | Source: Midjourney
“Harsh? Protecting my son isn’t harsh!” she snapped.
“Lucy, you’re jumping to conclusions,” I argued. “You don’t even know who she is.”
“I don’t need to know her! Look at these clothes. They scream trouble,” Lucy insisted.
Lucy doesn’t believe Eleanor | Source: Midjourney
I took a deep breath. “Lucy, let’s not make hasty judgments. Maybe she’s not what you think.”
Lucy glared at me. “Why are you defending her? You don’t know her either.”
“Because everyone deserves a chance. Even if she’s not what you envisioned for Barney, he must see something in her,” I reasoned.
Eleanor calms Lucy down | Source: Midjourney
Lucy’s eyes narrowed. “I’m not convinced. But for now, I’ll play along. I’ll talk to Barney.”
I nodded. “That’s all I’m asking. Just keep an open mind.”
Lucy sighed, “Fine, but if she hurts my son, I won’t stand by and watch.”
Lucy remains judgemental | Source: Midjourney
“I wouldn’t expect you to,” I replied.
We sat in tense silence, each of us lost in thought. This wasn’t over. Not by a long shot.
Eleanor talks to her daughter | Source: Midjourney
That evening, after everyone had left, I sat down with my daughter, Emily, in the living room. The warmth of the evening sun filtered through the curtains, casting a soft glow on her face.
“Emily,” I began gently, “can we talk about something?”
She looked up from her book, curiosity in her eyes. “Sure, Mom. What’s up?”
Eleanor timidly asks who is her daughter’s partner | Source: Midjourney
I took a deep breath. “I need to ask you about who you’re dating.”
Emily blushed, a shy smile playing on her lips. “Oh, Mom, I didn’t want to say anything yet, but… I’m dating Barney.”
I nodded, trying to keep my voice steady. “Lucy’s son, Barney?”
Emily admits to dating Barney | Source: Midjourney
She nodded enthusiastically. “Yes, he’s wonderful, Mom. We’ve been seeing each other for a few months now.”
I reached over and took her hand. “Emily, you know Lucy is one of my oldest friends. Things got a bit tense today because she didn’t know it was you.”
Eleanor listens to Emily | Source: Midjourney
Emily’s smile faded a little. “I was worried about that. Barney and I weren’t sure how to tell you and Lucy.”
“Well, it’s out in the open now,” I said, squeezing her hand. “I want you to know that I support you, but this might be a bit tricky to navigate.”
Emily and Barney | Source: Midjourney
Emily nodded, looking relieved but also a bit apprehensive. “I understand, Mom. I really care about Barney, and I hope you and Lucy can work things out.”
“We’ll find a way,” I assured her. “Just be honest with each other and patient with us. We’ll figure it out together.”
Eleanor hugs Emily | Source: Midjourney
Emily hugged me tightly. “Thank you, Mom. That means a lot.”
As I held her, I couldn’t help but feel a mix of worry and hope. This was just the beginning of a new chapter for all of us.
Hopeful Eleanor | Source: Midjourney
The next time Lucy asked about the huge discount from my daughter, who is a dentist and has been treating her teeth for several years, I was ready.
“Eleanor,” Lucy began, “could you please ask your daughter to give me the usual discount for my dental treatment?”
Lucy came to ask for a discount | Source: Midjourney
I looked her straight in the eye and said, “Well, Lucy, a woman of easy virtue, unfortunately, doesn’t deserve to cure your teeth anymore.”
The room fell silent as my words hung in the air. Lucy’s face turned pale. She finally got it and couldn’t believe it was my daughter she had been talking about. She stammered, trying to find the right words.
Eleanor refuses to provide benefits | Source: Midjourney
“I… I’m so sorry, Eleanor. I didn’t know. I was wrong. Of course, I accept her, and I apologize.”
“Lucy, I hope this teaches you to think before you speak. My daughter is a wonderful person, and she deserves respect.”
Lucy nodded, tears forming in her eyes. “I understand, Eleanor. I’ll never speak ill of her again. Please forgive me.”
I nodded, my heart softening just a bit. “I appreciate that, Lucy. Let’s move forward with kindness and understanding.”
Remorseful Lucy | Source: Midjourney
And with that, our group resumed our usual chatter, but there was a new sense of respect and caution in the air. Lucy had learned her lesson, and my daughter’s honor was restored.
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