Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.

Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.

For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.

As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.

Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.

At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.

Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.

Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.

Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Can You Guess What These 6 Items Were Used For?
If you imagine you can guess what these aged timey objects are, then have a look.
It is time for another enjoyment recreation of What Is It? From antiquated applications to strange ornamental goods, these secret goods might have you scratching your head! Some of these products may look odd, but consider a guess and see if you can figure out what persons generations back would have completed with one of a kind these goods.
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1) It is created from mixed metals, has slots in the top and connectors at the sides. Do you know what this was utilized for a long time back?
What is it?
For practice and bus rides, this was in which the conductor dropped the coins from fares in (the slots) and then he could pull them out from the bottom, neatly stacked, to give as modify back. The hooks at the facet are for attaching to his belt. A modern day version of this is however in use in the incredibly handful of locations in which payment is not necessary upon entrance.
See if you know the future a person!
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2) This cap has a female printed style and design, lined in blue, with chin straps. The cap as soon as upon a time in all probability had buttons or ties to hold it on. The form of the hat bears some resemblance to that of an aviatrix cap. Oh, and it’s filled with sand!
This strange cap is an early, handmade variation of a swim cap. The channels and stitching are machine-sewn and then filed with sand. It was well-liked in the 1920s to design swim caps after the popular aviatrix, but modern day rubber materials had been tricky to come by for the residence sewer. Because sandbags block h2o, it was a rational strategy, leaving the wearer free of charge to pick her material design and style (as an alternative of black or yellow rubber).
See if you can guess the following one particular!
5) This huge wooden drum has a lid with handle and footed foundation. There is a crank on the side. Have you viewed a single of these just before?
This cedar butter churn was employed for creating more substantial portions of butter. The other side reads “Farm Master Dairy Supplies” but we couldn’t enable you go through that- it would have specified it away!
Do you know the upcoming just one?
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6) This metal stand has three tiers, each individual with notches reduce out of it. This piece stands on a few legs and is about 4 toes tall. Have any thoughts?
The screen gives it away, but it wasn’t Coca Cola bottles that this stand was developed for. As part of many marketing and advertising tactics, Nehi produced these triangular stands to exhibit their soda bottles, the necks of which fit properly into the notches. Right before 6 packs caught on, these stands could be observed in corner retailers and grocery stores for the duration of the Depression.
Antiques can come to be thriller products as they transform about time and turn out to be unrecognizable. But sometimes, it is the name of an product that improvements! Below are 12 aged names for objects we all grew up with that you just don’t hear any more (except you are like us…we still use these outdated-trend conditions all the time).
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