Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
I Was Excited to Meet My Fiancé’s Parents, but Dinner Turned Into a Nightmare – Story of the Day
Meeting my fiancé’s parents should have been exciting, but nothing prepared me for the tension and judgment that followed. Between the quiet stares, sharp words, and unexpected secrets, the evening turned into a whirlwind I’ll never forget.
Mark and I had been together for about a year, and just recently, he proposed. It wasn’t the dreamy, candlelit proposal I had imagined as a little girl, but it was heartfelt, and I knew it came from a place of love.
For illustration purposes only. | Source: Midjourney
Besides, Mark and I would’ve ended up engaged anyway—it was just a matter of timing.
He proposed shortly after we found out I was pregnant. The pregnancy wasn’t planned, but the moment we saw those two little lines, everything changed. We were thrilled, nervous, and ready to tackle parenthood together.
That evening, we had dinner plans with Mark’s parents, and I was a bundle of nerves.
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Mark always described them as strict and traditional, which made me feel like I was stepping into an interview instead of a family meal.
Still, I told myself I could win them over. I’d always been good at making people like me—or so I hoped.
When Mark got home from work, I immediately began rifling through my closet.
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I must have tried on ten outfits, spinning in front of the mirror, asking, “Is this okay?”
Each time, Mark smiled and said, “You look great.”
But “great” wasn’t enough. I needed to look flawless. First impressions were everything.
In the end, I laughed at myself, realizing I had chosen the very first outfit I’d tried on.
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“Do you think they’ll like me?” I asked, twisting my hair into place.
“Of course, they’ll like you. How could they not?” Mark said, watching me in the mirror.
“But what if they don’t?” I asked, turning to face him.
“Then it doesn’t matter,” he said, his voice calm. “The only thing that matters is that I like you.”
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“Like?” I teased, raising an eyebrow.
Mark smirked. “I like you more than anyone. I love you even more.”
I laughed softly. “Good save.”
Mark leaned in and kissed me, his grin warm and reassuring. “You’ll be perfect.”
Once we were ready, I carefully picked up the cherry pie I had baked for the dinner.
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The warm, sweet scent was comforting, like a small reminder that I had put effort into tonight. Mark opened the car door for me, and we both climbed in.
During the drive to his parents’ house, I couldn’t help but notice Mark gripping the steering wheel a little too tightly.
His jaw was set, and his eyes focused straight ahead. “Are you okay?” I asked softly.
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“Yeah,” he said, but his voice wavered. I reached over, taking his hand. I wasn’t sure if I was trying to calm him or myself.
When we pulled up in front of the house, Mark sighed and looked at me. “Just… don’t say anything unnecessary, okay?”
“I won’t,” I promised.
We walked to the door, hearts pounding, and Mark rang the bell. A moment later, his mother appeared.
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“Hi, we’ve been waiting for you,” she said, her tone sharp but polite. “I’m Erin, though I assume you already know that,” she added, her eyes fixed on me.
“Yes, I’m Danica,” I replied, forcing a smile as I held out the pie. “I baked a cherry pie. Mark told me it’s your favorite.”
Erin’s face changed instantly, her smile fading. “A pie, hmm? I thought the host was supposed to handle the food. Or do you think I can’t bake my own pie?”
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“No, of course not!” I said quickly. “I just wanted to bring something special. I didn’t mean to offend you.”
She looked at the pie, then back at me. “It’s fine. Come in,” she said, stepping aside without another word.
Dinner was painfully quiet. The only sounds were the clinking of silverware and the occasional scrape of a chair.
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Mark had warned me his family didn’t talk during meals, but I thought he was joking.
Sitting there in silence felt awkward and unnatural. I glanced at Mark, but he just gave me a small, reassuring smile.
When we finished eating, I stood up to help Erin clear the table. She didn’t say much, just nodded and muttered a quick “thank you.”
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We moved to the living room, where Mark’s father, George, sat stiffly, barely looking at me.
He seemed uninterested, like I was a guest he didn’t ask for. Conversation turned to the wedding, but I had little to share.
“What kind of dress are you thinking of?” Erin asked, her eyes scanning me like she was already judging my answer.
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Before I could respond, George spoke up. “Erin, leave the girl alone. You’ve been bombarding her with questions all evening.” His tone was gruff, but it was the first time he had addressed me.
“It’s fine. I don’t mind,” I said, offering a small smile, though my nerves were fraying.
“See, George? She doesn’t mind,” Erin said, smiling back at me for the first time. It felt almost like approval, and I let out a small breath of relief.
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I looked at Mark and smiled, taking his hand. His touch grounded me. But the warmth of the moment vanished as Erin’s smile hardened.
“Danica, dear, in our family, we don’t show affection in front of others, especially before marriage,” she said, her tone sharp.
I dropped Mark’s hand like it was on fire. “I’m sorry,” I whispered, embarrassed.
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“So,” Erin continued, her focus shifting back to me, “what kind of dress do you want? You have such a lovely figure. Something fitted and long would suit you perfectly.”
I hesitated, feeling my cheeks heat up. “Well, I won’t have this figure for long. I’ll be five months along by the wedding, so I was thinking of something more flowing.”
Mark groaned softly and buried his face in his hands. My stomach dropped.
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“Five months along?” Erin’s voice was clipped, her eyebrow arched in disbelief.
I nodded. “Pregnant,” I said simply.
The room felt like it froze. Erin gasped, clutching her chest like I had just confessed to a crime. “Oh, my God,” she whispered. “What a disgrace! My son is going to have a child out of wedlock!”
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I blinked, stunned. “Excuse me, what?”
“This is shameful! You’re a disgrace to our family! How could you do such a thing before marriage?” Erin shouted, her voice rising with each word.
“We’re adults,” I said, trying to stay calm. “We’re excited about this baby—”
“Danica, stop talking,” Mark muttered under his breath.
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“How could you choose such a shameless fiancée?” Erin yelled at Mark. “She must have seduced you!”
“Erin, stop yelling at her. She’s pregnant,” George said, his voice cutting through her tirade.
“That’s the problem! What will people say?” Erin wailed. “Get out of my house! I don’t want to see you again!”
Tears spilled over as I stammered, “What did I do? I don’t understand…”
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“You and your illegitimate child are a stain on this family!” Erin spat. “Maybe it’s not too late for an abortion?”
I gasped. “What? What are you saying?” I cried, choking on my tears. Mark stayed silent, his face unreadable.
“Danica, let’s go,” Mark finally said, grabbing my hand.
Outside, his frustration boiled over. “What was that?!” he yelled at me.
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“I should be asking you that!” I shot back, my voice shaking.
“I told you not to say anything unnecessary!” he snapped.
“I didn’t know our child was ‘unnecessary’ to you!” I yelled.
“Not to me—to them,” he replied sharply.
“You said their opinions didn’t matter!” I cried, shaking my head.
“I warned you they were conservative,” he said, his voice flat.
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I looked at him, my heart breaking. “I’m staying at my place tonight,” I said, my tone firm, before turning away.
I still had a month left on the lease for my old apartment, so Mark drove me there. The ride was silent, tense.
When he pulled up, I stepped out without a word. Once inside, I sat on the couch, tears streaming down my face.
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My chest ached as I replayed the dinner over and over. Mark hadn’t defended me or our baby.
How could he let his mother say those things? My thoughts spiraled, and I placed a hand on my stomach, wondering if all this stress was hurting the baby.
The next morning, a firm knock startled me awake. Groggy, I shuffled to the door and opened it. George stood there, his expression unreadable.
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“How are you?” George asked, his voice calm but firm.
“What are you doing here?” I snapped, crossing my arms.
“I came to apologize for Erin,” he said, glancing down briefly. “She can be… overly emotional.”
I hesitated, then stepped back. “Would you like to come in?”
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“No, I won’t stay long,” he replied, shaking his head. “I just wanted to explain. This is personal for her. Her parents were very conservative, even more than she is. When we got married, she was already pregnant with Mark.”
I stared at him, stunned. “What? Then why did she react so negatively to me being pregnant?”
George sighed, shifting uncomfortably. “She has always felt ashamed of it. She thinks we should have waited. She doesn’t regret having Mark, but it’s something she struggles with. I wanted you to know.”
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I frowned, still hurt but trying to understand. “That’s why she treated me like that? To protect some old-fashioned idea of pride?”
George nodded. “Yes. You can share this with Mark or even tell Erin’s relatives if she keeps making a fuss.”
“I won’t tell anyone,” I said softly. “I don’t want her to feel as hurt as I do now.”
George gave me a small nod, then turned to leave.
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After he left, I decided to return to Mark. But as I stepped outside, I froze. He was standing there, holding a bouquet of flowers.
“I’m sorry,” Mark said, looking right at me. “I should have stood up for you and the baby. I didn’t know what to do, and I was scared.”
“Thank you for apologizing. It hurt so much,” I admitted.
“It won’t happen again. I promise, I’ll always be on your side,” he said, his voice steady.
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I nodded, a small smile breaking through. “Thank you.”
Mark leaned in, and I kissed him.
Suddenly, his phone buzzed. He stepped aside to answer it.
“It was my mom,” he said when he came back. “She wants to apologize. She asked what your favorite pie is.”
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I smiled faintly. “Tell her I love cherry pie too.”
Mark grinned. “Looks like you already have something in common.”
“You have no idea,” I whispered, letting him pull me into a warm hug.
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