When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
My 7-Year-Old Son Kept Coming Home from School Upset — the Reason Left Me Stunned
When Daniel, Sarah, and their son, Derril, move to a new city, they take some time to readjust to the new place. One positive about the move is that Derril’s school focuses on soccer, his favorite sport. Soon after, things get strange when the little boy notices his soccer coach hugging his mom…
Recently, our lives changed when my wife, Sarah, landed a promising new job. It meant uprooting our lives and moving to a new city, but we were optimistic about the future.
A woman in a business suit holding paperwork | Source: Midjourney
“We need this, Daniel,” Sarah said. “We need to plan for our future, and we also need a new start. Living here has become stale.”
“I agree,” I said. “And we need a better life for Derril.”
Our seven-year-old son, Derril, was especially excited about the move because we enrolled him in a school with a soccer club, which was the one sport that he absolutely loved.
A smiling little boy | Source: Midjourney
Sarah and I were thrilled to see him so passionate about something, especially because we knew that moving would be a big adjustment for him.
“I’m happy about the move, Dad,” he told me one day when we were buying him a new pair of soccer boots. “My old school only cared about baseball and basketball, but soccer wasn’t important.”
“I’m glad that you’re happy about this,” I told him. “I want you to be happy with this move, too. We’re not just doing it because of Mom’s new job.”
A row of children’s soccer boots in a store | Source: Midjourney
He nodded enthusiastically.
A few months passed, and I had finally gotten into the routine of working from home. Thankfully, my career in cybersecurity meant that I could keep working at the same company following the move.
But, over time, I noticed a change in my son.
A man working on his laptop | Source: Midjourney
One day, he came home from school looking troubled, his usual enthusiasm dampened. His bright eyes seemed to lose their sparkle, and he became quieter and more withdrawn.
Whenever I tried to talk to him, he would just walk away, retreating into silence.
It was unlike Derril, and it worried me.
An upset little boy | Source: Midjourney
“Something is going on with him,” I told Sarah when I was making breakfast for the three of us before the day began.
“I know,” she nodded. “I’ve been seeing that, too. Whenever I try to talk to him, he looks at me for a moment before looking away.”
“Maybe it’s just part of adjusting to a new place? And making new friends, too? Because he’s still eating and sleeping as normal. So, until that changes, I think we’re okay,” I said.
A man in the kitchen | Source: Midjourney
But then the tipping point came one day when I walked into his room after school and found him crying.
Just looking at him devastated me.
“Derril, what’s wrong?” I asked gently, sitting beside him on the bed. “I need you to tell me everything. Enough time has passed, and I know you’re not okay.”
A crying little boy | Source: Midjourney
He looked up at me, tears brimming in his eyes, and took a deep, shaky breath.
“I don’t want Mr. Sanders to be my father!” he blurted out.
The words hit me like a punch to the gut.
Mr. Sanders was his new soccer coach, and he was someone whom Derril had admired up until now.
A soccer coach holding a tablet | Source: Midjourney
“Why would he become your father, Derril?” I asked, trying to keep my voice steady and calm.
My son’s voice wavered as he explained.
“Yesterday, when Mom was picking me up from practice, he hugged her. And she didn’t push him away!”
Children playing soccer | Source: Midjourney
A cold sweat broke out on my forehead.
Sarah had been distant lately, but I always chalked it up to her being busy with her new job. I knew that it was going to be a rocky few months while we all adjusted. But at the same time, she seemed preoccupied, often lost in thought.
This, however, was something I couldn’t ignore.
A close-up of a shocked man | Source: Midjourney
Determined to uncover the truth, I logged off work early the next day and drove to the soccer field. Sarah usually fetched Derril from practice on her way home.
I parked far enough away to watch without being seen. I needed to know what was happening. I needed to know if Sarah and Mr. Sanders were romantically involved with each other.
As practice ended and the kids dispersed, I saw Sarah arrive. Moments later, Mr. Sanders approached her. They talked briefly, and then he placed a hand on her shoulder, leaning in close.
A man sitting in his car | Source: Midjourney
“They look way too comfortable,” I muttered to myself.
I watched as Sarah smiled but stepped back, looking around nervously, her eyes scanning the area as if she felt someone was watching.
“Yes, someone is watching,” I said to the car.
A woman standing outside while at soccer practice | Source: Midjourney
That night, I confronted my wife. I couldn’t take it any longer. I had made dinner and sat through the entire meal with doubts flooding my mind.
“Sarah, what’s going on with you and Mr. Sanders?” I asked straightforwardly.
Her face turned pale, and she took a deep breath, her hands trembling slightly.
A shocked woman | Source: Midjourney
“There’s nothing going on, Daniel,” she said. “I swear! He’s just been supportive, that’s all!”
“Supportive how? Derril thinks that he’s trying to replace me,” I pressed on. “I need to know why.”
Sarah’s eyes widened in shock and disbelief.
A frowning man | Source: Midjourney
“What? No! That’s not true! He’s been helping me with something else… something that I haven’t told you about yet.”
She sat me down, her voice trembling as she revealed a secret she’d been keeping.
“I can’t believe this,” I exclaimed, wondering why on earth I agreed to the move.
A couple talking | Source: Midjourney
Apparently, Mr. Sanders had recognized a man from his past. A man who had ran in the same circles as him when he was off the rails and took part in unscrupulous activities.
“And not just any man, Daniel,” Sarah said. “He’s dangerous. And he has a history of stalking and violence. Mr. Sanders said that he has been keeping an eye on him, and he noticed that the man has been stalking me.”
“What?! Why didn’t you tell me? This is something for the police to handle!”
A man hiding in the shadows | Source: Midjourney
But my wife shook her head.
“Mr. Sanders has been trying to keep Derril and me safe. Because he noticed the man watching me during a few practice sessions.”
I put my head in my hands. Suddenly, the world felt too heavy for me. What dramatic television show had our lives become?
A man holding his head | Source: Midjourney
“Mr. Sanders suggested not pushing him away too obviously to avoid raising suspicion. I should have told you, honey, I’m so sorry.”
“We need to speak to him,” I said. “To Mr. Sanders. I need to hear this from him.”
Sarah nodded, her eyes shining with tears.
When we met with him, he corroborated Sarah’s account, showing us evidence of the man’s criminal activities.
A couple talking | Source: Midjourney
“I’ve spoken to one of my detective friends,” he said. “They can’t do anything about this guy until something actually happens. So, I’ve been trying to keep an eye on Sarah and Derril. And the house.”
I had no idea what to say.
A close-up of a man | Source: Midjourney
That night, Sarah and I sat down in the living room, trying to discuss the next steps and how to secure our home. Moments later, Derril burst into our room, his face frozen in shock.
“There’s someone outside my window!” he shrieked.
“Phone the police,” I told Sarah.
A person looking out of a room window | Source: Midjourney
I rushed to his room, picking up the baseball bat that we displayed in the hallway. And sure enough, a shadowy figure was lurking near the tree not too far from Derril’s window.
Moments later, we heard sirens and saw the flashing lights of police cars. They arrived swiftly, surrounding the house and apprehending the man.
The officers confirmed that the lurker was indeed the man that Mr. Sanders had warned us about, and now, because he was caught, he was taken into custody.
Two police officers | Source: Midjourney
“I’m so sorry for the confusion or distress I caused,” Mr. Sanders said when he visited us the next day.
He brought a box of pastries that Derril dug into immediately.
“The thing is, I know his type. When I met him before, he would find a young successful woman and fixate on her. When I saw him at soccer practice, I knew that he was after Sarah.
A box of desserts | Source: Midjourney
“How do you know him?” I asked.
“I had a rough past, too,” Mr. Sanders said. “But I just got caught up with the wrong crowd. I didn’t do anything to this extent.”
We thanked Mr. Sanders for his help, and he left our home.
A man walking down a driveway | Source: Midjourney
Now that the threat was removed, Sarah and Derril seemed perfectly fine. But I still didn’t feel good about this. As grateful as I was to Mr. Sanders, there was something that just didn’t feel right about anything.
I wanted to leave. I didn’t feel safe. I didn’t want to stay here. I didn’t want my wife and child around Mr. Sanders.
A man looking out a window | Source: Midjourney
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